Huntington’s Disease

Living with Huntington's disease affects far more than movement, it impacts every aspect of daily life, requiring a community that understands the journey.

A group of five women, including healthcare workers, gathered in a room, holding signs that say 'Please Support' and 'Huntington's Disease,' indicating a supportive cause for Huntington's disease awareness.

To support individuals living with Huntington’s disease, we work closely with the Indiana University Huntington’s Disease Center of Excellence to provide specialized education and resources for our team members. At Byron, staff deliver compassionate care and meaningful opportunities while recognizing the unique physical, cognitive, and emotional challenges associated with the disease.

Training is essential to successfully meeting the complex needs of this population. Through our partnership with Indiana University, our staff receive ongoing education to ensure they continue providing exceptional care. This commitment begins during the hiring process, where we seek individuals who are well-suited to support residents with specialized needs. Using a multidisciplinary approach, team members learn about the progression and physiology of Huntington’s disease, as well as proactive strategies for addressing behaviors and challenges that may arise.

Four women, two of them smiling, sitting and kneeling in front of a booth at an indoor event. The booth displays a sign for Mentor Community Services and a table with various items including a prize wheel, toys, and informational materials. In the background, there are balloons, black curtains, and other attendees.

For more resources related to HD, see www.hdsa.org - a premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families. HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education and outreach to HD families and health care professionals across the United States.

A woman with short gray hair smiling and a man with dark hair standing beside her, both indoors in a room with chairs and a window in the background.

Because Huntington’s disease often develops at a younger age than many conditions requiring long-term care, adjusting to a senior living environment can be difficult. Byron’s younger resident population helps foster a greater sense of belonging and creates opportunities for residents to connect with peers who share similar life experiences.

Beyond the care we provide within our community, Byron proudly supports and participates in a variety of events that raise awareness and funding for Huntington’s disease research and advocacy, including walks, bowling events, concerts, and other community experiences.